WorldCat Identities

Kaye, Jane 1962-

Overview
Works: 42 works in 80 publications in 1 language and 2,180 library holdings
Genres: Academic theses 
Roles: Author, Other, Contributor, Editor
Publication Timeline
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Most widely held works by Jane Kaye
Governing biobanks : understanding the interplay between law and practice by Jane Kaye( )

18 editions published between 2010 and 2012 in English and held by 1,192 WorldCat member libraries worldwide

Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used
Principles and practice in biobank governance by Mark Stranger( )

19 editions published between 2009 and 2016 in English and held by 794 WorldCat member libraries worldwide

"Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated and new models and theoretical frameworks are presented in an intellectually stimulating and informative volume." "This truly international volume offers new insights from a range of disciplinary perspectives into the complex and challenging issues surrounding the governance of biobanks, and will be essential reading for policy-makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy."--Jacket
SAGE mixed methods research by Doyle Louise( )

1 edition published in 2019 in English and held by 127 WorldCat member libraries worldwide

For more than 50 years, SAGE has been one of the leading international publishers of works on research methods in the social sciences. This new collection, with six volumes organized by themes, provides readers with a representative sample of the best articles in mixed-methods research that have appeared in SAGE journals
Protecting privacy in population collections : is the Icelandic health sector database an appropriate model for the European Union? by Jane Kaye( Book )

3 editions published in 2004 in English and held by 3 WorldCat member libraries worldwide

Sharing data for future research--engaging participants' views about data governance beyond the original project: a DIRECT Study by Nisha Shah( )

1 edition published in 2018 in English and held by 2 WorldCat member libraries worldwide

Desiderata for digital consent in genomic research by Carlos Luis Parra-Calderón( )

1 edition published in 2018 in English and held by 2 WorldCat member libraries worldwide

Implementing a successful data-management framework: the UK10K managed access model by UK10K Project( )

1 edition published in 2013 in English and held by 2 WorldCat member libraries worldwide

Biobanks for Europe : a challenge for governance; Report of the Expert Group on Dealing with Ethical and Regulatory Challenges of International Biobank Research by Jane Kaye( Book )

2 editions published in 2012 in English and held by 2 WorldCat member libraries worldwide

This expert group report on the ethical and regulatory challenges of international biobank research has been authored by an interdisciplinary group with experts from science, law, governance and ethics. Biobank research is rapidly evolving, and in close interaction with developments in informatics and genomics. The size and breath of the collections of biological samples and associated data that can be assembled has increased exponentially. This opens up a vast range of new options for research and diagnosis, but at the same time also holds an important challenge for the governance of these activities. In this report, the expert group makes specific recommendations for good governance of Biobanks
Challenges and opportunities for ELSI early career researchers by ELSI2.0( )

1 edition published in 2016 in English and held by 2 WorldCat member libraries worldwide

Health-related quality of life and a cost-utility simulation of adults in the UK with osteogenesis imperfecta, X-linked hypophosphatemia and fibrous dysplasia by Lydia Forestier-Zhang( )

1 edition published in 2016 in English and held by 2 WorldCat member libraries worldwide

ERegistries: governance for electronic maternal and child health registries by Sonja L Myhre( )

1 edition published in 2016 in English and held by 2 WorldCat member libraries worldwide

Data sharing policy design for consortia: challenges for sustainability by Jane Kaye( )

1 edition published in 2014 in English and held by 2 WorldCat member libraries worldwide

Including all voices in international data-sharing governance by Jane Kaye( )

1 edition published in 2018 in English and held by 2 WorldCat member libraries worldwide

<> by Michael Morrison( )

1 edition published in 2015 in English and held by 2 WorldCat member libraries worldwide

Towards a data sharing Code of Conduct for international genomic research by Bartha Maria Knoppers( )

1 edition published in 2011 in English and held by 2 WorldCat member libraries worldwide

The governance structure for data access in the DIRECT consortium: an innovative medicines initiative (IMI) project by Harriet J. A Teare( )

1 edition published in 2018 in English and held by 2 WorldCat member libraries worldwide

Consent for Biobanking: The Legal Frameworks of Countries in the BioSHaRE-EU Project by Jane Kaye( )

1 edition published in 2016 in English and held by 2 WorldCat member libraries worldwide

Balancing Data Subjects' Rights and Public Interest Research: Examining the Interplay between UK Law, EU Human Rights Law and the GDPR by Jessica Bell( )

1 edition published in 2019 in English and held by 2 WorldCat member libraries worldwide

Personalized assent for pediatric biobanks by Noor A. A Giesbertz( )

1 edition published in 2016 in English and held by 2 WorldCat member libraries worldwide

Dynamic Consent: a potential solution to some of the challenges of modern biomedical research by Isabelle Budin-Ljøsne( )

1 edition published in 2017 in English and held by 2 WorldCat member libraries worldwide

 
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Governing biobanks : understanding the interplay between law and practice
Covers
Principles and practice in biobank governance
Alternative Names
Jane Kaye researcher

Jane Kaye wetenschapper

Languages
English (58)