WorldCat Identities

Ghanem, Buthaina

Overview
Works: 6 works in 6 publications in 1 language and 10 library holdings
Roles: Other
Publication Timeline
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Most widely held works by Buthaina Ghanem
ERegistries: governance for electronic maternal and child health registries by Sonja L Myhre( )

1 edition published in 2016 in English and held by 2 WorldCat member libraries worldwide

Antenatal care data sources and their policy and planning implications: a Palestinian example using the Lives Saved Tool by Ingrid K Friberg( )

1 edition published in 2019 in English and held by 2 WorldCat member libraries worldwide

Development of a targeted client communication intervention to women using an electronic maternal and child health registry: a qualitative study by Binyam Bogale( )

1 edition published in 2020 in English and held by 2 WorldCat member libraries worldwide

Governance guidance for an eRegistry for maternal and child health: lessons from the occupied Palestinian territory( )

1 edition published in 2018 in English and held by 1 WorldCat member library worldwide

Abstract: Background: The eRegistry for maternal and child health is an electronic registry system developed for the collection, analysis, retrieval, storage, and dissemination of information on health determinants and outcomes for women and children. The purpose of the eRegistry is to improve health-care provision and public health surveillance in the occupied Palestinian territory. Given the highly sensitive nature of reproductive health information, however, careful attention to ethical and legal considerations is essential. The aim of this study was to map the legal, regulatory, and ethical landscape using a situation analysis tool tailored for the Palestinian context and to identify gaps, opportunities, and actions necessary to ensure an ethical and lawful framework for an eRegistry. Methods: We used an exploratory situation analysis tool (SAT) to map the current legislative, regulatory, and governance environment in the occupied Palestinian territory. The primary objective was to assess, document, and analyse the legal and ethical landscape. Specific focal topics addressed by the SAT included identifying relevant legislation (eg, civil registration, data privacy, health registries, public health law), existing governance structures, accountability, and oversight bodies (ie, ethical review committees, data protection authorities), and data quality and security policies. The Palestinian National Institute of Public Health (PNIPH) completed the SAT and held workshops for relevant stakeholders, including staff from the ministry of health's legal affairs department, PNIPH staff, and other legal experts. No ethical approval was required because data were collected from public documents. Findings: The findings from the SAT reflect the current situation in the occupied Palestinian territory with respect to existing laws, accountability and oversight bodies, and data collection protocols and policies concerning data privacy and security. Existing Palestinian legislation relevant to health registries includes Article 4 of the General Statistics Law (2000), which honours data confidentiality and the privacy of individuals. The Penal Law number 16 of 1960 addresses the disclosure of confidential information, whereas Article 355 specifically states that disclosure of official confidential information to unauthorised persons is unlawful and could result in imprisonment. Furthermore, the Public Health Law (2004) addresses general maternal and child health issues in Articles 4 and 5. We investigated relevant oversight and accountability bodies (eg, ethical review board) that might be relevant to an electronic maternal and child health registry. Finally, in a review of existing data privacy protocols and policies, we noted that few formal protocols (ie, privacy manual) or policies regulate data collection and access practices. Interpretation: Specific areas within the legal and regulatory framework of the occupied Palestinian territory could be strengthened. The eRegistry Governance Guidance Toolkit, predicated on the SAT content, outlines responsible data stewardship practices and provides assistance in developing protocols and policies in lieu of specific laws by providing a framework to ensure the protection of women and children's privacy. Effective governance that protects women and children's privacy and confidentiality is essential for maintaining public trust and ensuring the long-term success of an eRegistry. Funding: European Research Council and the Norwegian Agency for Development Cooperation (Norad)
Needs assessment for a reproductive health registry towards a harmonised reproductive health registry in the occupied Palestinian territory: a qualitative study( )

1 edition published in 2017 in English and held by 1 WorldCat member library worldwide

Abstract: Background: Reductions of maternal and child mortality are among the UN's Millennium Development Goals. The estimated maternal mortality ratio (MMR) in the occupied Palestinian territory in 2010 was 64 per 100 000 livebirths. WHO has developed a global initiative, the harmonised reproductive health registry (hRHR), to improve data quality and to reduce maternal and infant mortality. We undertook a needs assessment to identify strengths, opportunities, and gaps in the present information system for reproductive health in the occupied Palestinian territory before development of a strategic action plan for the future. Methods: We used a qualitative needs assessment tool (NAT) that has been developed in the International hRHR project and adapted to the Palestinian context. The tool was developed with sections on legal issues, essential indicators, minimum dataset, data collection, data dissemination, and data use. This assessment will help to identify data gaps, which can then be filled to help reduce maternal and child deaths. Through in-depth interviews with senior managers at the Ministry of Health, we adapted the NAT to the Palestinian context. A 1 day workshop with 20 participants from Ministry of Health stakeholder institutions (eg, Department of Primary Health Care) completed the NAT. Findings: The needs assessment showed substantial current data collection in antenatal, perinatal, and postnatal care in local health facilities. However, very little information is exchanged between primary and secondary care, jeopardising the continuum of care and preventing data being used to benefit services provided or for public health purposes. Nationally, reports consist mostly of aggregated, monthly reports of health status and activities that are then published annually. Data are not used for management, to improve quality of care, or to give feedback to health-care providers. Although many of the interventions practised are in line with the essential interventions recommended by WHO, legislation about confidentiality of health data is restricted, and no national agreement has been made about essential interventions, indicators, or a minimum dataset to be collected. Interpretation: Data that are collected should be kept at a necessary minimum and be selected according to evidence-based essential interventions. A way to improve the system would be to introduce a comprehensive computerised hRHR in a consensus-driven process with the major stakeholders in maternal-child health. Funding: WHO Palestinian National Institute of Public Health Project
 
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  Kids General Special  
Audience level: 0.95 (from 0.88 for Needs asse ... to 0.97 for Antenatal ...)

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